"About Us" is a series of interviews with accomplished self-advocates in Florida.
Rachel Robinson of Fort Myers has been a caregiver for fellow self-advocates for 20 years.
Having graduated with certificates and degrees in computer technology, administrative-related support, and even sign language, Rachel has held down both paid and volunteer roles in administration and accounting for everything from churches, nonprofits, and banks.
Her vast experience, which now includes a FL SAND Fellowship, proves that she can take on many challenges firsthand without hesitation. Check out the interview below on how she became a successful advocate for herself and others.
When did you start to identify as a self-advocate and why?
I started to identify as a self-advocate when I began living on my own and looking for various agencies that could assist and offer some support to help me maintain my independence. Navigating this journey made me realize the importance of self-advocacy in accessing the resources and rights needed to thrive.
What advocacy related issue is the most significant to you?
Many families often face significant challenges in finding continued support and services once their loved ones transition out of educational programs. Advocating equitable access to resources and support is essential to ensure that their needs are met, and their quality of life is maintained for families of other races with children, youth, and young adults who have aged out of the school systems where they were receiving some assistance.
Describe a time when you had to overcome an obstacle related to your disability.
The time I had to overcome an obstacle was when I was suffering an injury, and I couldn’t use the subway station where I lived because it wasn’t accessible. I had to travel around Chicago by bus and had to give myself two hours travel time to get from and to my destinations. This experience was incredibly frustrating and exhausting, but it also reinforced the need for better accessibility infrastructure in public transportation systems. It highlighted the daily struggles faced by individuals with disabilities and motivated me to advocate more passionately for accessible public services.
What did you find helpful in overcoming that obstacle?
I was thankful that there was more than one mode of transportation to get me from point A to point B with my transportation pass. This flexibility and the availability of alternative routes were crucial in helping me navigate the city despite the subway station's inaccessibility. Moreover, the experience taught me resilience and the ability to adapt to challenging circumstances. It reinforced the importance of advocating for comprehensive and accessible public transportation systems that can accommodate the diverse needs of all individuals, regardless of their physical abilities.
How has your advocacy affected your career and personal life?
My advocacy efforts have played a significant role in shaping my career and personal life. Professionally, they have guided me towards roles and organizations that prioritize inclusion and accessibility. Personally, advocating for myself and others has strengthened my resolve and sense of purpose. It has deepened my empathy and commitment to creating a more equitable society for all. Still, there is a pressing need to speak up and out about ensuring basic assistance for independence. It's crucial to let legislators know that cutting budgets will severely impact the disability communities. These funds are essential for providing the support and resources needed to maintain independence and improve the quality of life for individuals with disabilities.
What advice would you give to someone struggling to accept their disability?
I would let them know that they are not alone. It’s important to give themselves time to process and understand what is happening to them and to reassure them that gaining more knowledge about themselves and their diagnosis is beneficial. Emphasizing the significance of reaching out for help if they choose is also crucial. Finding a supportive community and accessing resources can make a world of difference. It’s essential to remember that accepting one's disability is a journey and taking it one step at a time can lead to a more fulfilling and empowered life.
In 10 years, what would you most like to see changed in the lives of people with disabilities?
I would like to see better changes sooner than 10 years in the lives of people with disabilities to get the resources they need as soon as possible. Instead of having them wait until forever trying to get things that they need.
Describe a time when you had to advocate on the spur of the moment.
One such occasion was when I spotted a flyer on the bus about a listening session with the board of the transit authority in Chicago. The notice mentioned potential reductions in transit services in neighborhoods that relied heavily on public transportation. Realizing the significant impact this would have on the disability and senior communities, I felt compelled to attend and voice our concerns.
If you could pick one song as a theme song, what would it be?
“I Will Trust in the Lord,” by Dr. E. Dewey Smith Jr.
The FSACentral staff would like to thank Rachel for taking the time to participate in the interview. Let us know what you think about "About Us" on Facebook. If you know an accomplished self-advocate in Florida you think we should showcase in "About Us," contact us here or via Facebook.
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